The Rights of Persons With Dementia and Their Meanings

Jiska Cohen-Mansfield*

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

5 Scopus citations


Concern about the lack of human rights afforded to persons living with dementia has emerged in recent years. Although the literature addresses certain rights, it does not include a holistic framework of rights in terms of the lived experience of older persons with cognitive impairment. Inspired by the 20 rights advocated for children by physician-educator Janusz Korczak, this article analyzes his formulation of rights in the context of persons with dementia, linking them to the ethical principles of Beneficence, Autonomy, and Justice. The analysis thus provides a holistic framework for addressing the human rights of persons with dementia, and their meanings for the lived experiences of persons with dementia and their caregivers. It offers new insights into the philosophy and practice of care, with implications for dementia care research, public health policy, practice guidelines for health care professionals, and the instruction of family and other caregivers of persons with dementia.

Original languageEnglish
Pages (from-to)1381-1385
Number of pages5
JournalJournal of the American Medical Directors Association
Issue number7
StatePublished - Jul 2021


FundersFunder number
Minerva Foundation3158329500


    • Dementia care
    • holistic framework of rights
    • human rights
    • lived experience of persons with dementia
    • perspective of persons with dementia


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