Psychosocial outcomes of sharing a diagnosis of cancer with a pediatric patient

Haya Raz*, Nili Tabak, Shulamith Kreitler

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

Abstract

Purpose: This innovative pilot study was designed to provide research-based evidence on the variables to consider informing a child of his/her cancer diagnosis, so as to minimize the negative psychosocial effects of the cancer experience on survivors. The hypotheses of the study were that "good information" about cancer, will allow the child a better understanding way to cope with treatment and improve sociopsychological outcomes at adulthood. Methods: Ninety-one adult childhood cancer (CC) survivors got the questionnaires while waiting to their routine checkup at a grate CC medical center in center Israel. Results: To our surprise and not according to the hypothesis, there was a difference between children diagnosed up to 12 years of age and those diagnosed during adolescence. (Participants were divided into two groups according to their age at diagnosis: from birth to 12 years old and from age 12-18). In the group diagnosed at a younger age, those who had received "good information" were found to have better quality of life, lower mental pain, and higher mental pain tolerance than did those in the same group (diagnosed at a younger age) who received "not good information." By contrast, in the group diagnosed during adolescence, those who had received "not good information" scored higher on these measures than did their counterparts who had received "good information." Conclusion: Given that information conveyed to children diagnosed with cancer can have a significant impact on survivors' quality of life, further research is needed to determine the precise information to be divulged to children at the time of diagnosis. In the meantime, extreme caution, sensitivity, and careful judgment are required. Clinical relevance: Findings of the current study and of future studies can be used to formulate clear guidelines for assessing a child's readiness and the information to be divulged, so as to improve the quality of life of CC survivors.

Original languageEnglish
Article number70
JournalFrontiers in Pediatrics
Volume4
Issue numberJUL
DOIs
StatePublished - 1 Jul 2016

Keywords

  • Childhood cancer
  • Childhood cancer survivors
  • Information
  • Meaning
  • Mental pain
  • Quality of life

Fingerprint

Dive into the research topics of 'Psychosocial outcomes of sharing a diagnosis of cancer with a pediatric patient'. Together they form a unique fingerprint.

Cite this