TY - JOUR
T1 - A psychosocial model of a medical problem
T2 - Maternal phenylketonuria
AU - Shiloh, Shoshana
AU - Waisbren, Susan E.
AU - Levy, Harvey L.
PY - 1989/9
Y1 - 1989/9
N2 - Treatment of maternal phenylketonuria (PKU) consists of a low phenylalanine diet, begun before conception, which is believed to prevent mental retardation, microcephaly, and congenital heart disease in offspring of women with PKU. Experiences in treating these women indicate that their cooperation with medical recommendations is generally poor. We present a psychosocial model on adjustment and coping in maternal PKU. The proposed model defines four stages in the reproductive years of women with PKU, each of which has specific behavioral goals. The four stages are: (1) prevention of unplanned pregnancies; (2) reproductive decision-making; (3) diet initiation; and (4) diet continuation through pregnancy. Review of the literature on the different behaviors expected at the different stages enabled indentification of psychosocial factors that may explain success or failure in achieving the goals at each stage. Based on this theoretical framework, practical implications for treating women with PKU have been suggested.
AB - Treatment of maternal phenylketonuria (PKU) consists of a low phenylalanine diet, begun before conception, which is believed to prevent mental retardation, microcephaly, and congenital heart disease in offspring of women with PKU. Experiences in treating these women indicate that their cooperation with medical recommendations is generally poor. We present a psychosocial model on adjustment and coping in maternal PKU. The proposed model defines four stages in the reproductive years of women with PKU, each of which has specific behavioral goals. The four stages are: (1) prevention of unplanned pregnancies; (2) reproductive decision-making; (3) diet initiation; and (4) diet continuation through pregnancy. Review of the literature on the different behaviors expected at the different stages enabled indentification of psychosocial factors that may explain success or failure in achieving the goals at each stage. Based on this theoretical framework, practical implications for treating women with PKU have been suggested.
UR - http://www.scopus.com/inward/record.url?scp=0024950013&partnerID=8YFLogxK
U2 - 10.1007/BF01324649
DO - 10.1007/BF01324649
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AN - SCOPUS:0024950013
SN - 0278-095X
VL - 10
SP - 51
EP - 62
JO - Journal of Primary Prevention
JF - Journal of Primary Prevention
IS - 1
ER -